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  1. #11
    The Great Wild Woolly WoollyNewty
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    5,593
    PF I'm so relieved for you someone is finally listening. Thank you for the update xxx
    Invincible Lord of Nature

    If I didn't laugh, I'd cry:
    http://slightlysouthofsanity.blogspot.com/

  2. #12
    Thanks all.

    Lucypede she only collected her specs yesterday as we've been on holiday for a fortnight, early days but I will keep you posted on progress! She said they're very dark and some kids at school were making fun asking why she was wearing sunglasses in class this morning, luckily she's really thick skinned & she found it funny that they didn't understand why she needed them.

    Marti it has been such a battle, she was assessed at nursery age but at the they weren't concerned as her "behaviours" we're apparently age appropriate! Now her behaviours haven't changed and she's 3.5yrs older they seem to be as concerned as I am! It's a big relief because I often think its just me picking fault, I was a very bright child who did well at school and never found Anything challenging, Max is exactly the same and I have found it hard to accept that Lucy has these difficulties sometimes I feel like I'm putting too much pressure on her (not literally) but pressure on my expectations of her but speaking to the OT my expectations for her age are only what she should be doing and is currently failing to do!

    Hopefully once school get a copy of the report they will liaise with the team and put the wheels in motion! School can be good I think if pointed in the right direction they were brilliant at nursery and reception level bitty Yr 1 was a massive struggle which has caused Lucy to fall further behind her classmates in Yr2

    Fingerscrossed this is the start of things changing :-)



  3. #13
    .......... Damsel Adelelee
    Location
    My House
    Posts
    40,140

    Re: Lucy had her OT Assessment today

    So glad you are finally getting somewhere
    Just give me a block, I'm gonna be fine..........




  4. #14
    Got husband, need wife! Dr Spouse
    Location
    In my mad scientist laboratory, getting children to do difficult things
    Posts
    11,800

    Re: Lucy had her OT Assessment today

    Quote Originally Posted by Bop View Post
    That sounds like it was a huge positive - so glad it went well and lets hope she gets the extra help she needs quickly.

    I remember your story over the years and can't believe its taken that long to get her properly assessed.
    I was just thinking the same thing! So pleased you have some help for her now though.

  5. #15
    TVoR, QoN, etc. redhed
    Posts
    11,951

    Re: Lucy had her OT Assessment today

    Oh I am so pleased. It will be really interesting to see what the report says. And I'm sure orthotics will help, they have good turnaround times where we are so hopefully that will bring a quick benefit.

    I think the thing now is to grab onto the paediatrician when you finally get to see them and not let them go. Ime, the paed is the best one at chasing up OT and physio etc. So even if they see you and say: "well we can't do a whole lot", see if you can get them to keep her on the books and see her once a year or something. Paeds will do this where OT and physio will discharge (their waiting list targets seem to work slightly differently), and then if you are still on the books you can always get an appointment with the paed if a new problem comes up.
    CHASE children's hospice and Disability Challengers
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  6. #16

    Re: Lucy had her OT Assessment today

    Great news :) so pleased some one is finally listening - agree with red about the OT, we're having a nightmare trying to get back on it!

  7. #17
    Snorks 5, Mr Baby 2! parkejm
    Location
    Norwich
    Posts
    25,872

    Re: Lucy had her OT Assessment today

    That sound really good PF, so glad she has someone fighting her corner with you. Hope their measures will really help. Bless her and her tolerance of other kids who don't understand
    xx Hermie xx
    xx Snorks xx
    xx Mr Baby xx

  8. #18
    D.I.V.O.R.C.E.D damsel bisy backson
    Location
    over the hills and far away
    Posts
    7,571

    Re: Lucy had her OT Assessment today

    good news pf, hope you get the support you need for her xx

  9. #19
    Will take that on board RH the Pead she has been referred to is apparently really good and very helpful he's the same one my friends saw when they went private to get their Son assessed who has Dyspraxia.

    I have several friends who are Teachers or TA's and they have all but one said they think Lucy has Aspergers, I've done quite a bit of reading about it and she does pretty much "fit the bill" but it wasn't bought up during the assessment and I think if they thought it was a possibility they would have mentioned it so I was quite relieved of course if it does get bought up at a later date I'll deal with it then!

    Personally at the moment I think she has lots of little things going on and nothing major iyswin. She's certainly not you're average 7 year old in
    Lots of ways and she often sticks out amongst her classmates if they're in a group. Most people who meet her usually describe her as "bonkers" or "off her head" lol but I do think that's just her personality as DH & MIL are pretty "nuts" too haha!!

    Am Hoping the appointments all come through quickly so we can get the ball rolling before she moves up into Yr 3, her current teacher is fantastic but if she has who I think she will have next year I think we're going to struggle getting her help fingerscrossed there will be a teacher re-shuffle

  10. #20
    Already had her cutlery posted today so at least I know they haven't forgotten us :-)

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