Bittersweet memories ... NRR

[DillyDally]

Well, it's just a brief 10 minute interview, but it was nicely edited, so all the waffly crap I must have come out with has been cut I even sound quite articulate

The bit that made me cry was when I described how I could remember everything about the room where we were told, how it smelled, the curtains being drawn against the sun, and blowing in the breeze, the words the doctor used ... It brought it all back.

[joanne62]

I was talking to someone the other day about when we were given DSs diagnosis and I could feel myself welling up as the memories came flooding back.

[Stropypop]

:higgles: my ds is only 5 and to look back even now, there is just so much. I remember thinking when he was 1 that I was ok with him but when he was 2 and I was looking back, I was thinking I so wasn't there yet but was now and today when I look back to then I've moved on so much further again.

Of course it helps that he is so absolutely fantastic and makes my heart melt every time I see him, even when he's driving me to the very end of my patience

I can't even begin to imagine him being a young adult and where I'll be then.

Also, how amazing were you being able to talk about it so soon, even if they cut some of your waffling I still think it's something that isn't talked about much and for me I so would have loved to hear someone else telling me their experience. All I had for the first few weeks was how he just needed a little more love and attention until a chance meeting with a very nice lady whose little girl was a few months older, told me that it was ok to be upset, a weight was lifted from me and I realised I wasn't a bad person.

[DillyDally]

Stropy - I met with a woman who had a son four years older when DS1 was a tiny baby, and she was great - I felt it was easier to ask her lots of questions that I wouldn't think to ask anyone else I think I did this radio interview, and the TV one, when DS1 was about 18 months to 2 years old (I was pg with DS2 when I did the TV thing) so it wasn't immediate

[irislili]

the heart team suggested that i keep a diary to reflect on C's journey but i couldnt do it at the time and I think even now the memories would be so painful that i am glad that i cant go back in time as it were.
x x