View Full Version : baby lexx update
firstly i would like to say thank you all so much for my gift voucher this morning :) and thank you for all the PM's ive been sent they are all very caring, kind and sweet and mean the world to us.
anyway, i am now ready to talk about baby Lexx. we saw a consultant tonight for a "last chance" type thing.
At the 20 weeks scan they thought they had found a problem with bubs, but said any investigation further would have to be done privatley as our NHS hospital is tight oops i mean skint and wont help :mad: lots of tears later i managed to find somewhere for a scan - 50 miles away, and we had to pay a hire a sonographer for an hour to look at bubs. he confirmed theres something wrong with bubs and he hasnt developed his spine properly, he told us what our options were.
so we went to our doctor explained what had happened he told us our options and whats likely to happen to bubs and me if we continue the pregnancy till 40 weeks, the options were not good or nice. rivers of tears later we decided that it is medically safer for me and bubs not to continue with the pregnancy. so after making this very painful decision we went back to the doctors to "get the ball rolling" only to be told the NHS wont help me as we live in the wrong area (ie: the NHS postcode lottery b0ll0cks).
so after making this decision and being just so torn we were told the only thing we could do was to go private. more tears later and looking around i found somewhere that could help us and the wait was/is over 2 weeks just to see a consultant for a "Last chance" attempt to save bubs or see if theres anything that could be done after the birth.
tonight we saw the consultant and after being prodded, pocked, bloods being taken, scaned, questioned and being made to feel like i was very inadequat. they said there is nothing they can do and the chances of bubs being.....
still born @ 40weeks is very high
miscarriage between now and then is high
the chnace i will die in child birth dramaticallly higher than normal.
so next week i will be induced and bubs will be born, most likely still born, or he will die in our arms soon after birth. because there is a law about this sort of thing, when i get to the hospital next week (which is also 50 miles away in another direction, there are only 2 places in the COUNTRY that can see me :rolleyes: ) if bubs has had a growth spurt and looks more than 24 weeks our hands will be bound legally to go "full term" with him, unless i miscarry or die in the mean time.
its been the most painful heartbreaking journey for us ever and its not even over :( im so scared and p!ssed off and hurt and very very angry at the NHS for not helping, forgive me for mentioning money but this is costing just short of £2000 to do the thing we never thought we would be doing :(
thank you again for all your kind wishes sorry for depressing you and im sorry if your crying at this :o :o
lots of love and hugs
gina & lexx
I am so so sorry you and Lexx are having to go through this. Damn NHS, what the hell are they playing at?:-(
I want to say so much, but don't know how.....
Take care and we're all here for you, always.
Goodness Gina, I am in floods of tears, and don't really know what to say.
I'm so so sorry you have had to go through this and my thoughts are with you and Mr Lexx.
It's such a shame that the NHS couldn't help you, makes you wonder what exactly we pay our taxes for.
Take care of yourselves. x
dora the ex...
aww my god...i dont know what to say other than i am so sorry for you and your family xxx hugs to you all xxxx
Oh you poor love. My heart goes out to you.
I don't know what to say, exept that you are incredibly brave and courageous and all of us are here for you.
I can't even imagine what you're going through, but thanks so much for posting it and sharing your pain with us.
I am continuously astonished and amazed at your ability to get through this.
I'm so sorry to hear your news and that you are being dealt with in such a shabby way.
My heart goes out to you both. I think you are being very courageous.
:hug: :hug: :hug: Gina I am so sorry for all the pain you must be feeling right now. It is truly dispicable the way you have been treated by the NHS . I cant quite find the right words to say to you and Lexx but I really want you to know I am thinking of you and baby Alexander.
:hug: :hug: :hug:
Love Lisa xx
Oh, im so so sorry for you and Mr Lexx having to go through all this.
My thoughts are with you all at this time - everyone is here for you as you know.
Oh mrs Lexx i`m so sorry. I don`t really know what to say it`s so awfull what you and your hubby have to go through:hug: :hug: :hug: .
Take care of each other.
Such a sad situation for you and Mr Lexx. I'm so sorry you are having to go through this awful time.
There's no way I can imagine how you're feeling at the moment, but I'm in awe at your bravery.
Thinking of you.
My heart goes out to you and Lexx and your poor little baby. Your journey has been a terrible one and I wish you strength to get through this awful time.
Lots of love and we are all here for you whenever you need us.
I too can't believe that you are being forced to pay for something one would assume the NHS is there to treat, baffling!
I'm so sorry that this is happening to you x
Hello Mrs Lexx, I've never spoken to you before, but your post moved me to tears. I'm so, so sorry that you have to go through this. I imagine any words are pretty inadequate right now but my heart goes out to you and my thoughts are with you. Take care.
Words completely fail me. I'm sorry about everything that you have been through and still going through. I can only imagine how painful all of this has been for you and Mr Lexx. I'm totally shocked by the lack of assistance you've had from the NHS.
My heart goes out to the both of you. I hope that you will find strength to help each other through such a difficult time.
I've never "spoken" to you before Mrs Lexx. But I just want to add my condolences to the list. You are an immensely brave woman.
just wanted to say how sorry i am for you and so annouyed with the nhs. thinking of you :flowers:
There is nothing I can say, I am so devastated for you all. I cannot believe the NHS too :angry:
You are all in my thoughts
Oh Mrs Lexx :higgies:
I am so sorry that you are having to go through this :higgies:
I cannot believe how unhelpful the NHS have been in our area :( Especially in a time like this :higgies:
Take care chick :higgies: :flowers:
:hug: Mr & Mrs Lexx. Your post has moved me to tears. I am so sorry that you are both having to go through this heartbreaking time. And I am so mad that the NHS are not doing more to ease the heartache.
My thoughts are with you and your family.
Mrs L I am so so sorry, I was really hoping everything was going to be ok!
I dont know what to say! Please remember where I am if you need me! :hug:
Love to you, Mr L and baby Alexander!
Love Lou xxx
i am so sorry to hear your news, dont know what to say but that i am thinking of you.
I am also digusted at the NHS, words fail me
Mrs Lexx; I'm so sorry for what you're going through.
And to have to fight to get the scans and treatment you need - and to have to pay - is just shocking. A wee email to your MP might be helpful?
Hugs to you. We're all thinking of you. xx
Mrs Lexx, I'm so sorry you and your hubby are having to go through this. You're being so brave and you sound so positive despite it all.
Possibly not at the front of your mind right now but I agree with Cherrypie that you could maybe think about writing to your MP or even the papers. The way you've been treated by the NHS is diabolical.:angry:
I'm so sorry to hear what you're going through. I know three people that have been in similar situations and it is a devastating time without the added hassle of an unsupportive health care trust. Have you spoken to the ARC helpline? They might be able to advise you regarding getting NHS treatment and/or help you through this time with support and information. I know they were an invaluable support to two of the people I know both during and for some time after. Their website is http://www.arc-uk.org/ and their helpline number is at the bottom of the home page.
(((( Hugs )))) to you all - I wish there were more I could do to help.
I truely do not know what to say as sorry is just not enough - :hugs: to yourself and mr lexx
I think what you're going through is absolutely terrible and wouldn't wish it on my worst enemy. You have my admiration for being able to post, and yes, I'm in tears, it's heartbreaking to hear your story. Not sure what else to say. :hug:
Oh God Gina i am so so sorry to hear this, i have no words that could possibly make you feel any better but i wanted you to know i am thinking about you and Mr Lexx and i hope that you can find the strength to get through this and come out the other side.
Again, i'm so sorry :higgies:
i am so sorry
words fail me. i'm so so sorry that you're going through all this heartache and pain. i truly am devastated for you and my heart goes out.
really sorry to here your sad news.
I cannot believe how awful the NHS are being with you.
That is unbearably sad.
Thinking of you all.
I'm so very sorry for what you are having to go through, it seems so unfair.
There's nothing I can begin to say to make you feel better but please know I've thought about you all a lot and my heart goes out to you.
Take care x
Thinking of you all.x
After everything you've been through i can't believe how sh1te the NHS are treating you and the fact you have to pay for something you really don't wanna do, i agree with a couple of the other girls and that when you feel ready you should go to the paper and write to your local MP, its just plain wrong that they can get away with this.
My thoughts are with you. xx
Oh my God Gina I am so so sorry. Words fail me at how terribly you've been treated and what a horrid horrid run of things for you and Mr Lexx. You must be all over the place.
The same thing happened to a very good friend of mine 6 years ago - she had to make the same decision as you and it was absolutely heartbreaking. The only thing I will say to you is that you must look after each other and have as much counselling as possible (both of you).
We are all here for you.
Oh Gosh Mrs Lexx- I really don't know what to say to console you.
What you have to go through has got to be the hardest thing for anybody- ever, and I feel your pain, I'm so so sorry for you & Mr Lexx.
NHS being useless just agonise matters further, and they really shouldn't be allowed to treat people like that.
So sorry :no:
I don't know what to say but I couldn't read this without posting to say how sorry I am that this has happened to you- I'm crying and am as hard as nails normally so I cannot even begin to imagine what you and Mr Lexx are feelinng/going through.
Look after each other, you will be in my thoughts.
My heart goes out to you, Mr Lexx and Alexander. What a truly awful experience for you all and am sure that the saga with the NHS has only made things more difficult. It makes me sick to think that it all comes down to postcodes and cash.
My mum went through a similar experience when her baby was diagnosed with Edwards Syndrome at 20 weeks. A close friend also had to make the same heartbreaking decision when she was told that her baby's head hadn't developed correctly. Take all the counselling that is offered to you. Cry, scream, shout - anything that gets you through this.
All three of you are in my thoughts and I am truly sorry that you are all going through this.
Have no advice but couldn't read and not post - it's just heartbreaking :hug: :hug: :hug:
As others have said, it's truly appalling what you've been through. No-one should be treated the way you have been.
Take care of yourself,
:higgies: it seems so inadequate but just wanted to send you Mr Lexx and Alexander a big hug. Words cannot express how sorry I am for you and your situation.
Take care of each other.
I echo what everyone else has said, its disgusting the way you have been treated. Very angry on your behalf.
Thinking of you Gina.
words fail me - so so sorry for you and hubby. Take care of each other.
Shame on the NHS for putting you through this and making things so much worse.
mrs s xxx
Oh Mrs Lexx. :higgies: I am so sorry to hear your news. All my love and best wishes to you and Lexx.
I too am so disgusted with the nhs.
There isn't much I can add to what everyone has already said - I'm so, so sorry you've had to go through this. My thoughts are with you and your family. Take care xx
I also can't add to anything that has been said. I was so terribly upset to read your news, it seems incredible to have to now go through this added heart ache.
Thinking of you
MRs Lexx, it really doesn't seem fair or just that you have had to undergo this terrible trauma AND have to worry about getting treatment . I'm so angry on your behalf, but understand that right now you just have to get through it and I would do EXACTLY as you are doing in your shoes, that's for sure.
Having lost my baby at 10 weeks, I can't imagine what it must be like to lose one at your stage - my heart really goes out to you and I really wish I could say something that would make you feel better.
I do think you're making the right decision and I send you warmest best wishes to help you get through this awful time. Every day is a step towards being healed and feeling better.
Oh Gina I am so so sorry to hear your news and so sad to hear the way you have been treated by the NHS.
My heart really goes out to you, your OH and baby Alexander. Life is just not fair.
I hope you find the strength to get through all this and please remember we are here for you.
Take care xxxxx
My goodness, what an awful situation, my heart is breaking for you and Mr Lexx.
You have been treated awfully by the NHS, they have really let you down :angry:
I really dont know what else to say apart from I am thinking of you, hugs to you both
I'm absolutely devastated for you and Mr Lexx. :higgies: Take care of each other.
And needless to say shame on the NHS.
God bless you all.
Thinking of you and praying for you all at this dreadful time.
Oh Mrs Lexx, I am so sorry and really don't know what to say. I am amazed at your strength and my thoughts and prayers are with you & Mr Lexx. :hug:
Gina I've only just seen this post now. I'm so upset to read what has been happening to you and baby Lexx, and the awful treatment you have been getting :no: Your post moved me to tears.....we will all be thinking of you over the coming weeks.
Big huge hugs to you and Mr Lexx.
thank you all so so much for your messgaes they are all so kind and helpful, im just dreading next week :oops:
thank you all again
I really don't know what to say, just that I'm thinking of you both, I'm so sorry.:hug:
oh god i'm so sorry ive only just seen this too - mrs lexx how awful for you all, i am thinking iof you an pray that all goes as well as ti can - you sound so strong, i am thinking of you
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